God Bless Massimo (picture drawn by Andrea's son)
ALD is a rare disease known as Adrenoleukodystrophy. It is a nuero-degenerative disease that affects one in 20,000 children in the United States. Massimo is a 2nd grader and up until about to the end of September was attending Our Lady of Grace in Fairview, NJ. My son attends this school as well and the school has been putting on various fundraisers to help alleviate some of the family's financial burden. I, from my experience, know how your life can change in one day once you are diagnosed with any life threatening disease, let alone a rare disease. For one, you can't understand why this would happened to you. Is there really a God? What did you do to deserve this? These were some of my first questions when my daughter was first diagnosed with multiple sclerosis in 2003 and then five years later, in 2008, when I myself was diagnosed with breast cancer.
However, in this case this is a seven year old child. His chances of survival are not as great as someone diagnosed with MS or someone diagnosed with breast cancer. His only option seems to be a bone marrow transplant to slow the progression of ALD. Provide Massimo's family with hope! Visit their website http://www.caringbridge.org/visit/massimo. If you haven't donate to anything on this page at least donate to Massimo's Fight.
Checks can also be made out to Massimo Against ALD and sent to:
MASSIMO AGAINST ALD
C/O Our Lady of Grace School
Attention: Michele Burke
400 Kamena Street
Fairview, NJ 07022